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Salt intake help

PostPosted: Sat Apr 29, 2017 8:41 pm
by micadantas
Hello everyone! I'm a mom of a month old boy with classic CAH salt wasting. His (AMAZING) pediatric endocrinologist requested to give him 1/2 tsp daily; mixing with his milk (he's exclusively breastfed) he absolutely hates and do not drink if we add salt; even if is just a little added to his bottle
Anyone has any tips to help on how to give him salt daily??
TIA

Re: Salt intake help

PostPosted: Sun Apr 30, 2017 7:44 pm
by Sue Elford
This is probably the hardest question to answer, as I don't really believe there is a satisfactory solution! The sodium chloride solution does taste foul and although mixing it with milk to dilute it may make it a bit more palatable, it still won't taste very nice. Some parents just put it into their babies mouth in a syringe and then try and feed them, to take the taste away but until they are on solids, there is no real easy way to get this down a baby.

The good news is that the sodium chloride is only given in the early months and once a child is on solid foods, they do wean them off it and most babies are able to stop it completely before they are a year old. I know that may seem a long time away for you yet though so in the meantime you just have to do your best to get your little one to take it - I am sure every parent reading your message will empathise, as we know it isn't easy!

Re: Salt intake help

PostPosted: Sun Apr 30, 2017 10:34 pm
by micadantas
THANK you so so much for the response!!!!! Yeah, I'll just keep putting in his mouth a pinch thru out the day! Also big thank you in the bracelet information. After unread your response I purchased his engraved medical bracelet.
Very happy to find this group since all this is so new to us

Re: Salt intake help

PostPosted: Mon May 08, 2017 8:00 am
by Adel
My baby does take it with the milk providing it's the right ratio on the other hand he does try to spit out the fludrocortizone I've found that if I give him the vitamins at the same time he doesn't spit out so maybe using the vitamins flavour to hide the sodium flavour....good luck Mum

Re: Salt intake help

PostPosted: Thu Dec 14, 2017 8:15 am
by addisonsophia
I had to help my friend while she was having a baby and then she faced the same problem.
:( :(
I was so busy helping her, I had to get my research papers done online.
:D