Health of children and young people with CAH in the UK
02 December 2016 11:20 am
The study is fully funded by the National Institute of Health Research. The research aims to develop novel tests to monitor CAH control and generate data to improve future health and well-being. The study will be conducted at one of the participating centres (list below) and will ideally replace a regular follow-up clinic appointment. A potential extra part will explore the use of cortisol clearance studies for monitoring purposes.
In addition, we are looking to recruit healthy (not affected, non-carriers) children and teenagers aged between 8 and 18 years to undergo a urine, saliva and a blood test, who will be study controls and can attend on the same day.
We are paying parents/guardians of volunteers up to £40 in travel expenses and giving the children a £20 high street voucher as a thank you.
If you are interested in finding out more about this study please contact your/ your child's usual endocrinologist/specialist or the chief investigator of the study (Nils Krone, 0114 271 7508, N.Krone@sheffield.ac.uk).
List of participating centres: Sheffield Children’s Hospital; Birmingham Children’s Hospital; Royal Hospital for Sick Children, Yorkhill, Glasgow; Great Ormond Street Hospital, London; University College London Hospital; Addenbrooke's Hospital, Cambridge; Bristol Royal Hospital for Children; Royal Manchester Children's Hospital; Oxford Children's Hospital; Alder Hey Children's Hospital, Liverpool; Great North Children's Hospital, Newcastle; University Hospital Southampton, Southampton; The Royal London Hospital; Nottingham Children’s Hospital; University Hospital of Wales, Cardiff; The Royal Hospital for Sick Children, Edinburgh