Welcome to the CAH Support Group
We support people with Congenital Adrenal Hyperplasia, their families and friends.
Congenital Adrenal Hyperplasia (CAH)
What is CAH?
CAH occurs approximately once in every 15,000 people worldwide. It is an inherited condition which prevents the adrenal glands functioning correctly. To stay healthy, people with CAH must take daily life-long medication to replace the hormones which their adrenal glands don’t make.
How we help
The CAH Support Group is run by people who, between them, have been living with CAH for over 100 years!
Supporting CAH since 1991
The group was formed by our Chair, Sue, not long after her son was born with the condition.
Fundraising for research
We raise money for research and to develop treatment methods and medication.
Answering your questions
We run regular events so members can meet others living with the condition. There’s always someone to talk to!
Medical advisors
We work with CAH specialists including endocrinologists, nurses, surgeons and psychologists.
The CAH Support Group is a charity run by its members.
The support group was formed in 1991. Our aim is to give support to people with CAH and their families and friends, to increase awareness of the condition among the public and the medical profession, and to raise funds to support research.
Fundraising
CAH needs your help
Like many charities the CAH Support Group need to ask the public for money. We rely on public generosity – an enduring feature of our group, but one that can never be taken for granted.
You can read all the books and see all the doctors, but talking to someone who’s actually been there and understands how you feel is a huge reassurance.
Latest articles
See all articles here
Pituitary Awareness Month (October) – Symptoms in the Spotlight
October is Pituitary Awareness Month. Although not CAH, some of the information from the Pituitary Foundation may be helpful for those living with CAH. Find out more at the Pituitary Foundation's website here. Header image from Pituitary Foundation UK. Recent Blog...
2026 Annual General Meeting – Online, 18th October
The CAH Support Group is pleased to announce its 8th Annual General Meeting (AGM). It will be held in online via Microsoft Teams on Sunday 18th October 2026 at 9:30-10:30 UK time. If you are a member of the CAH Support Group, you will have received an email...
Patient Survey: Improving the Delivery of Genetic Results
CAH is a rare genetic condition and many of us will have received results of genetic testing at some point on our CAH journey. When you received these reults might not have been at the best time - pehaps you received genomic test results while you were driving, on...